whew...where do I begin?

We were all sick last week. It took me out of commission for 2 days and the rest of the week, I functioned at a minimum. Everyone seems to be just about better except for Riley. He's still got a nagging cough that caused me to drag out the breathing machine. We're doing Xopenex twice a day for now.

We've finally switched out all of the 3-6 month clothes for both 6-9 AND 6-12 month sizes! Addison can actually fit into some 12 month clothing. The 3-6 month stuff had been getting too small for a while but I really didn't want to change out everything and then have to do it again when the weather got cooler. Last year, I bought them both adorable Christmas outfits on a super clearance that are size 12 months. I'm actually concerned that they might be too small.

The boys had their 15 month well visit at the pediatrician last Tuesday. Riley weighed 14lbs. 4oz. and was 23.5 inches long. Addison weighed 15lbs. 7oz. and measured 25 inches long. I had so many questions for the pediatrician that for the first time, I brought a notebook with me full of questions. I asked about the boys shaking when they get startled out of sleep and he wasn't concerned at all. I asked about starting dairy (they either needed to get an ok to start dairy or a prescription for special formula to keep getting WIC) and I was told to go ahead and start giving dairy but to make sure I give them yogurt with probiotics. We talked about their head x-rays that they had done a few months back. Their suture lines still aren't closed but the x-ray indicated everything was normal and the ped. and a neurologist both agreed but want to continue to watch and make sure they close when the soft spots close.

I also asked about their progress with physical therapy and he said he wanted them to get more aggressive therapy. It worked out nicely that today was their 1 year evaluation for Easter Seals/Early Intervention.

So, at today's evaluation, a team of 3 people came out to do a bunch of tests. The boys tested anywhere from 6-9 months in all of their tests so they more than qualify for therapy still. I think we all know it would happen but it's always such a slap in the face when you hear someone tell you that your 15 month old babies are functioning at a 6 month old level.

Ian and I mentioned that the pediatrician wants more aggressive therapy and we all (eval. team included) agree that they need it. They're now set to have 3 therapists a week, for an hour per child. They'll have a new physical therapist which is kind of bittersweet but I think it's the right decision. This therapist works specifically with babies and preemies and was thrilled to be able to take the twins case. They'll be getting a speech therapist. This lady was also delighted to get micro preemie twins. She'll initially start working with them to learn to eat new textures and we'll transition into making sounds and eventually words. Lastly, we'll be getting an occupational therapist to help with their fine motor skills. We're not sure who it will be yet but we hope to hear within the next week.

So, tomorrow will be our last session with our current physical therapist. And, for the record, I think he's an awesome guy but I just don't feel like he's able to push the envelope as much as we want. And, he only has openings in the evenings which really sucks for us.

So, we all agreed that this is the time to start pushing them harder. They've had a year to grow and get the basics down, and now we want to see them do more.

9-19-09 Addison is "Big Bro" and Riley is "Little Bro"

9-20-09 Riley in the black hat and Addison in the Steelers hat

9-28-09 Getting ready to go on a walk. Addison in the red, Riley in the blue

1 year ago

While the people, including my family, remember the events that took place 8 years ago, today is also a reason for my family to celebrate. Last year, on 9-11-08, Riley was discharged from the NICU and for the first time, our whole family was able to be together. I remember all of the memorials that were taking place and everyone talking about remembering 9/11 and I was filled with joy as I marched out of that NICU for the last time.
It certainly feels like our family has been complete for more than a year. So much has happened. A clothes company, Little Me, sent me 2 outfits for the babies over the summer. When I opened them, I began to cry. It was 2 of the same outfits that they had worn in the NICU, only in 6/9 month size. They're finally fitting into 6-9 month size clothing and 2 days ago, I put Riley's outfit on and cried. I was sad when we unpacked all of his NICU stuff and realized that this outfit wasn't there. I mean, it would have gone back to the NICU when they outgrew it but it was an outfit that Skylar had picked out and just looked so incredibly adorable on my little guy. Back then, we had to roll up the sleeves on his preemie sized outfit and his legs barely reached into the leg holes. To think back then, that they would fit into something bigger was a stretch of the imagination.
It's funny how something as simple as an outfit can bring out so many emotions but for me, it did. This was the only picture I took, and of course you can't see it, but next time he wears it, I'll be sure to post a picture. I laid them down in the co-sleeper to take a shower and when I came out of the bathroom, this is how I found them. Addison is on the left and Riley is on the right.

It's quite a difference from a year ago:

They're both doing so well. Addison is working on his one upper tooth, just on the opposite side of Riley's. They're both rolling all around the floor and pushing themselves up. They can both get onto their arms and knees but as soon as they try to get anywhere, they kick out their legs. Addison is able to sit again, as long as he has his hands down in front of him.

They go back to the pediatrician on the 22nd. I can't wait to see how big they are! They have the whole evaluation team coming out on the 29th to do a 1 year evaluation. I know they'll be considered very delayed in a wide range of stuff and possibly need more therapists, but I'm ok with that. They're making progress and they're taking their time. As long as we know there's no known reason for their delays, other than being early and still very small, we know they'll get there when they're ready.