Tuesday, June 23, 2009

Birthday party fun and on with life

We all had a great time this past Saturday. We had some of our wonderful friends and family here for most of the day to celebrate Addison and Riley's birthday. Ian made delicious food and everyone left with a full tummy. Thank you again to everyone who came to celebrate!
The boys each got a small round cake (they were free when you buy the big cake) and tonight, we're going to let them dig into them. It was too busy at the party to try and get them set up with their cakes.

As the last guests were getting ready to leave, the rain had stopped and there was this beautiful rainbow glowing over our development!
This past Friday, the boys had their 1 year well visit with the pediatrician. Addison weighed in at 11lb. 6oz. and 22.5" long. Riley has finally passed Addison and he weighed 11lbs. 8oz. and was 22.25" long. They're doing really well with the new formula that the doctor gave us. They're still nursing at night but it was really time to start supplementing. I literally nursed all day long and since I started supplementing, they're eating and gaining better. I'm very pro-breastfeeding but I'm ok with supplementing. I worked hard to breastfeed micro preemie twins, exclusively for 11months, and I gave them a fantastic start.
So, back to the ped. visit. Ever since they came home, both boys have had these veins running down the sides of their heads. And, ever since they've been home, I've been able to feel almost a little bump where those veins run. I didn't say anything before because I assumed that as their skulls closed, it would get better. I finally said something and the pediatrician has ordered x-rays to see if it's just the veins that we're feeling or if the sutures are open in the skull. If the sutures are open, we'll be sent for an ultrasound to see the cause and then possibly referred to a neurosurgeon. He strongly believes that it's just the veins but he wants to just be 100% sure. They're not displaying any other signs of hydrocephalus (I am sure that's spelled wrong) but I think that is his major concern if it's not just the veins. Of course, I'm scared. How could you not be. We go for the ultrasound at 9:45am tomorrow and I'm really hoping that it will be for nothing.
We hit one year and I finally felt like I could breathe a little bit easier. We got through RSV and then another cold, they were making progress with physical therapy, and then something else pops up.
So, please keep them in your thoughts tomorrow. I'll post an update as soon as I have any results.

2 comments:

Anonymous said...

I wish I could have been there to see them...but I had to go to my brother's wedding.

They have gotten to big and some so far! Congratulations!

Have you gotten them on MA yet? I know it's been a life saver for us with Audrey (and Aidan...even though his specialist doesn't take any insurance...at least it picks up his meds).

Oh and an FYI...if they are on MA they automatically qualify for WIC (in case somebody hasn't told ya).

~ Erin (still can't remember my password)

kimberlee said...

Happy Birthday little Boys!
They have come a long way, and so have you.