Thursday, December 31, 2009

New year, new adventure

Just when you think you're at a nice steady pace, the troubles of micro preemies become loud and clear.
Yesterday was the boys 18 month well visit. We've had a rough couple of months with physical therapy. We've had 4 different therapists since October. Some better than others. We're finally happy with who we were matched with and I've seen lots of changes in the boys. Addison crawls. He's almost crawling on his hands and knees. He pulls to standing, climbs over things, and is sitting unassisted (as long as you prop him into the sitting position first). He eats table food but prefers to dissolve the food in his mouth instead of chewing it. He has started to clap and does "so big" (puts his hands up in the air when someone says so big).
Riley, on the other hand, does not sit unassisted. Just this week he's regularly able to sit with his hands propping him. He almost never puts weight on his legs/feet. He'll push up and down on my lap as a game but will not pull himself up or put his legs down while in the exersaucer. He's still army crawling but does get up on his hands and knees and rock.
So, I brought it up to the pediatrician and I asked when it switches from "there's nothing wrong and they'll "catch up" to is there something wrong and that's why they're so delayed?" He said there's always been something "wrong" and now it's just a question if it's something neurologically or just a side effect of being born so small. He's referring us to a developmental pediatrician at the Hershey Medical Center. Apparently it could be some time before we're able to get in because there's not many developmental peds. around. I guess once we're seen there we'll get more information towards a diagnosis or cause for their developmental delays. It will allow us to have more targeted therapies and possibly more therapy. We've also been referred for a cranial ultrasound to be sure there's no extra fluid or swelling in the brain. He doesn't think that's likely but since their soft spots are still open, he wants to be sure everything is ok.
Enough about all of that. Christmas was a lot of fun. The boys got very spoiled but didn't have any interest in tearing off wrapping paper. They got lots of toys (almost all with a therapy purpose in mind) and they're enjoying them every day. We only had one sick visit in December and it was just for wheezing and chest congestion. They were both healthy for Christmas and we enjoyed a weekend of friends and family.
Addison now weighs 18 pounds even and Riley weighs 16lb. 10oz. At our doctors visit just 2 weeks before the well visit, they were 17lb. 8oz. and 15lb. 12oz. with their clothes on. They've had a pretty big growth spurt over the past month or so. Part of the reason for the weight gain is because of our awesome speech therapist. She has them eating almost all table foods. I only use their baby food to mix with regular foods. We're going to now start weaning down their formula and switching to part milk/part formula and we're going to try to decrease the number of bottles they're taking in hopes of increasing the amount of meals and snacks. Riley is my big eater. He loves to eat all types of food and he chews everything with no issues. He's also the first one to have a molar come in. He drinks perfectly from a sippy cup too! Addison needs some work. He loves food and will shovel handfuls of food into his mouth but then he lets it dissolve before he starts to chew. He'll eat any and all table foods and so far but doesn't really do well with the sippy cup. He knows what to do but he prefers to dump it on the tray and then play with it.
All of the kids loved their Christmas Eve pajamas!

Addison plays so much in the exersaucer

And Addison has discovered how much fun it is to splash in the dogs water dish

This is about as involved they got in opening presents

Riley didn't want anything to do with wrapping paper

But he sure liked playing in the new ball pit!

Addison liked it too! He sat like this for about a half hour.

2 comments:

cassie-b said...

And a Very Happy New Year.

Thanks so much for sharing your wonderful story.

Cassie-b

Cindy (Nickita) said...

So adorable... love the pics! Thanks for the update... finally! LOL