Evening update...

So today was our first really saddening day from an update perspective... I mean every day your child is in the hospital is somewhat sad, but the lack of forward progress and general problems of the day was a real upsetting thing for us.

When I arrived home Lindsey was very ill, feverish, and immobile. She barely was able to ask me to call the doctor to cancel the appointment. If she is still anywhere near this sick in the morning I will drag her over to her doctor.

On another note, I had a temperature of 99.5/6 consistently which was just enough to really make me doubt my health. Suffice it to say that neither of us saw the babies, which is a first and as it turns out? A very difficult experience.

I was able to speak with the Nurse Practitioner who was on site at the NICU today and she informed me that Riley's PICC line attempt was, as Addison's, unsuccessful. Riley is feared to be septic, so is on a 48-72 hour regimen of antibiotics. Both of them had "air leaks" today, cause by the fact that their airways outgrew their intubation prosthesis... so, they were up sized to a more "air tight" tube, and have since been more stable from an oxygen saturation perspective.

The staff have been very, very good to us, and willing to make sure SOMEONE can answer any question that we have. After a 30 minute conversation, the NP told me to call as much as we have to to sleep tonight... which we probably will.

Leah and Skylar are doing well, and have adjusted to the situation about as much as you can expect a 3&1/2 and 7 year old child to adjust. We are blessed with wonderful children.

Everyone is stable, everyone is safe. We miss them a lot, and can't wait to see and potentially hold them! Having had enough negativity for this Thursday, I'll end with our good news for the day:

Addison continues to accept increasingly larger feedings, and both boys now have "standard" IV lines (like you or I would have in the leg or arm).

Good night everyone, and thank you.